3,181 Comments Posted by Lynne
[Grinning and running]
- Location: Kings Park Psychiatric Center (view comments)
- Gallery: Buildings 39, 138, 139
If, like most institutions, you had little money, you had several choices. You could strap them in so they wouldn't fall out (restraint! Eeeks!), you could lay everyone on the floor on mattresses so when they rolled over they wouldn't have far to go (how callous! How barbaric!), you could make wooden sides for the beds (but then the person in the bed couldn't see anything but the ceiling), or you could go for a large crib which at least offered some way of seeing what went on. I think there would have been equal criticisms had they chosen ANY of these options.
Again, it's easy to be critical of the situation if you aren't aware of the cultural views at the time. People with handicaps were sent away because they were considered "incurable," families were strongly encouraged to leave them behind, the state received very small amounts of money for their care, and the staff were paid outrageously low salaries and were generally treated like grunts. If it wasn't for the group of underpaid but dedicated and caring staff who kept these folks alive, even if they had to fight management and other staff who didn't feel likewise, many of these folks wouldn't be alive today (and there are MANY people still alive today who lived in institutions when they were at their most crowded peaks in the 60s and 70s). There were also courageous families who stood up for their loved ones in these places and fought for more money for better care and for money for community placements because they didn't receive any government assistance if they tried to keep their loved ones at home.
And just try to care at home for a large person with a severe to profound handicapping condition without support from others, and do it day after day after week after month after year. And don't get too comfortable and try to sleep through the night because your loved one DOESN'T understand danger and something terrible could happen if your attention wandered or you slept too soundly. This was not a black and white "institutions = bad, staff = bad, families = bad," but a mixture of what was believed at the time.
I challenge anyone who is critical of what happened back then to have been part of the culture at the time to have acted much differently, especially with the lack of support they would have gotten. This is NOT a defense of how things used to be - they were atrocious - but this IS an attempt to educate people on why it happened so that it doesn't happen again. The budget is getting tighter and institutional budgets are getting squeezed, as are the budgets for community and home programs for folks with disabilities.
I hope all of you who have expressed concern about what you have seen on Motts' site are contacting your local and state governments and asking for increased funding for people with disabilities. Otherwise saying "tut tut" and being outraged about what happened in the past - while ignoring that it is funding that prevents this from happening today in your very own community - means you are also turning a blind eye and are part of the problem.
[OK - sorry - jumping back down off soapbox again.]
- Location: Fuller State School and Hospital (view comments)
- Gallery: Disturbed
- Location: Fuller State School and Hospital (view comments)
- Gallery: Disturbed
- Location: Fuller State School and Hospital (view comments)
- Gallery: Disturbed
- Location: Fuller State School and Hospital (view comments)
- Gallery: Disturbed
- Location: Fuller State School and Hospital (view comments)
- Gallery: Disturbed
- Location: Fuller State School and Hospital (view comments)
- Gallery: Disturbed
- Location: Fuller State School and Hospital (view comments)
- Gallery: Disturbed
- Location: Fuller State School and Hospital (view comments)
- Gallery: Disturbed
- Location: Fuller State School and Hospital (view comments)
- Gallery: Disturbed
- Location: Fuller State School and Hospital (view comments)
- Gallery: Disturbed
- Location: Fuller State School and Hospital (view comments)
- Gallery: Disturbed
- Location: Fuller State School and Hospital (view comments)
- Gallery: Disturbed
- Location: Fuller State School and Hospital (view comments)
- Gallery: Disturbed
It's good to point out how bad things used to be, but the pointing needs to include another hand *in the present* reaching out to include these folks.
[Ack! Sorry! This must be my "moral indignation" day! I need to jump down off my soapbox before someone pushes me off real hard!